Comments on: My autism success story? http://insideschools.org/blog/2008/11/26/my-autism-success-story/ Sat, 20 Mar 2010 21:56:14 +0000 http://wordpress.org/?v=2.3.3 By: Karen http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5109 Karen Mon, 22 Dec 2008 13:21:54 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5109 Marni, your blogs are inspirational, and like many others, I could close my eyes and have someone read the exact words substituting my daughter's name for your son's and it would all be true... except for this haunting line... "Yes, there are specific challenges that Brooks has overcome one hundred percent. They are now set in stone; that is, we are confident they will not reverse themselves, and our family owns them proudly. There are big ones and small ones, and we are fortunate enough to have a long list." We must never take for granted the children's successes because we and many others work so very hard each and every day toward maintaining the children's progress. We are the fortunate who have gotten placement in the appropriate educational settings where the right therapy is received almost continuously. Unlike your story, my daughter's story, contained REGRESSIONS, heartbreaking, unbelievably real, and completely unneccessary. Due to her tremendous progress over the years, she was originally placed in a crowded CTT classroom of a local school where unrealistic demands were placed upon her young overloaded system to the point of decompensation. Her autistic symptoms returned with a vengance. I fought the long, hard, good fight to have her case reviewed and we were so very fortunate to obtain her new school and classroom after one whole year. It has proven nothing short of a miracle. We have our wonderful little girl back, and now her possibilities seem endless. Marni, your blogs are inspirational, and like many others, I could close my eyes and have someone read the exact words substituting my daughter’s name for your son’s and it would all be true… except for this haunting line…

“Yes, there are specific challenges that Brooks has overcome one hundred percent. They are now set in stone; that is, we are confident they will not reverse themselves, and our family owns them proudly. There are big ones and small ones, and we are fortunate enough to have a long list.”

We must never take for granted the children’s successes because we and many others work so very hard each and every day toward maintaining the children’s progress. We are the fortunate who have gotten placement in the appropriate educational settings where the right therapy is received almost continuously. Unlike your story, my daughter’s story, contained REGRESSIONS, heartbreaking, unbelievably real, and completely unneccessary. Due to her tremendous progress over the years, she was originally placed in a crowded CTT classroom of a local school where unrealistic demands were placed upon her young overloaded system to the point of decompensation. Her autistic symptoms returned with a vengance.

I fought the long, hard, good fight to have her case reviewed and we were so very fortunate to obtain her new school and classroom after one whole year. It has proven nothing short of a miracle. We have our wonderful little girl back, and now her possibilities seem endless.

]]> By: Robbi http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5029 Robbi Thu, 04 Dec 2008 08:10:18 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5029 I am fortunate to be an aunt to the most remarkable nephews and nieces, which include my New York nephew Brooks. While we are far apart geographically, our close relationship is preserved through Marni’s weekly phone calls to my mother. She has this extraordinary ability to share with me and my sisters, not only the gist of the conversation but also what isn’t said – the enthusiasm, passion, humour, hope, laughs and tears that are part of life with Brooks. I do believe my incredibly cute nephew is an autism success story – one that grows and changes with each new success. I am fortunate to be an aunt to the most remarkable nephews and nieces, which include my New York nephew Brooks. While we are far apart geographically, our close relationship is preserved through Marni’s weekly phone calls to my mother. She has this extraordinary ability to share with me and my sisters, not only the gist of the conversation but also what isn’t said – the enthusiasm, passion, humour, hope, laughs and tears that are part of life with Brooks. I do believe my incredibly cute nephew is an autism success story – one that grows and changes with each new success.

]]> By: jmb http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5013 jmb Fri, 28 Nov 2008 15:51:56 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5013 Parents of children with autism and other developmental disabilities quickly learn the true meaning of success -- one very different from society. The definition of "hero" changes as well, none of whom are honored by ticker tape parades or keys to the city, but who have earned our respect and deep appreciation. They are our children and the many professionals and volunteers who work with them and guide us in our daily challenges and successes. Yes, much to be thankful for. Parents of children with autism and other developmental disabilities quickly learn the true meaning of success — one very different from society. The definition of “hero” changes as well, none of whom are honored by ticker tape parades or keys to the city, but who have earned our respect and deep appreciation. They are our children and the many professionals and volunteers who work with them and guide us in our daily challenges and successes. Yes, much to be thankful for.

]]> By: Shirley (Baba) http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5007 Shirley (Baba) Thu, 27 Nov 2008 13:06:52 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-5007 I smiled reading your blog, but there were tears streaming down my face, tears of joy because I am so proud of this beautiful boy & his beautiful parents, & I give thanks for you all. I smiled reading your blog, but there were tears streaming down my face, tears of joy because I am so proud of this beautiful boy & his beautiful parents, & I give thanks for you all.

]]> By: patricia. st.aimee http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4999 patricia. st.aimee Thu, 27 Nov 2008 04:15:49 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4999 Brooks is an amazing kid. I love spenting time with. He shows great strength in things he wants to challenge.He is cute loving and fun to hang with. He could be so much fun that you sometimes want to asked yourself if he really has mild autiusm. Brooks is an amazing kid. I love spenting time with. He shows great strength in things he wants to challenge.He is cute loving and fun to hang with. He could be so much fun that you sometimes want to asked yourself if he really has mild autiusm.

]]> By: Sharmyn http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4994 Sharmyn Wed, 26 Nov 2008 16:19:47 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4994 Thank you for sharing your son's accomplishments. I share all the same feelings. Have a wonderful Thanksgiving! I really enjoy reading your blogs.... Sharmyn Thank you for sharing your son’s accomplishments. I share all the same feelings.
Have a wonderful Thanksgiving!
I really enjoy reading your blogs….

Sharmyn

]]> By: Nancy http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4993 Nancy Wed, 26 Nov 2008 15:57:00 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4993 Yes, you have a lot to be thankful for! Happy Thanksgiving! Yes, you have a lot to be thankful for! Happy Thanksgiving!

]]> By: Denise http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4992 Denise Wed, 26 Nov 2008 15:56:09 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4992 Marni, You are making a tremendous difference in the lives of others with your sharing and blogging. Blog away! Another one of your fans..... Marni,

You are making a tremendous difference in the lives of others with your sharing and blogging.

Blog away!

Another one of your fans…..

]]> By: Janice http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4991 Janice Wed, 26 Nov 2008 15:26:24 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4991 Great post! I'm thankful my son has come so far as well. And thanks to you, Marni, for the reminder! Great post! I’m thankful my son has come so far as well. And thanks to you, Marni, for the reminder!

]]> By: Anne http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4990 Anne Wed, 26 Nov 2008 14:51:15 +0000 http://insideschools.org/blog/2008/11/26/my-autism-success-story/#comment-4990 Marni, as usual you hit the nail on the head--you could substitute the name of my 5-year-old and everything you say would apply to him and me (except the circus, which we haven't made it to yet :)) Happy Thanksgiving! Marni, as usual you hit the nail on the head–you could substitute the name of my 5-year-old and everything you say would apply to him and me (except the circus, which we haven’t made it to yet :))

Happy Thanksgiving!

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